Hi Patrick,
I've just seen John S's commentary about negativity – so I will step carefully.
I am sure that there is part of the ME community that will use & embrace social media (Facebook/Twitter etc.) and enjoy it. However I suspect that there is also quite a large part of our community that never will do so (and for many varied reasons).
I spent the majority of my working life in the IT industry, so I'm not uncomfortable with technology in itself. Indeed I was on Facebook for a short while a few years ago as it was the only way I could view some family photos from Canada at that time. I have since tried to remove myself from the site but suspect that it's not really possible to remove oneself entirely. I won't bore you with the reasons I won't use these sites – I think its sufficient to say that I won't.
So my point is very simple. I hope we don't get to the stage where someone has to have a Facebook or Twitter 'profile' in order to access particular information or facilities on any of your websites, as this would certainly exclude myself (and I suspect many others) who do not wish to participate in any way in these invasive systems.
Regards,
IanT